Love, Life and LillyAnna

LillyAnna's journey is quite unique and certainly her own. In the midst of days of pain and frustration- pain for her, frustration for u...

There are moments in time that stick with you.  As Lil and I sat snuggling in a waiting room at the NIH dozing off in a rare moment of s...

My Dearest Lilly, You are turning 6.  I might say this every time you have a birthday.  I am not sure but since this is my letter I am ...

I am the type of person who likes the TV on for background noise.  However, I will only watch movies and shows that are happy or comedic... ...

Where do I even begin with what has been happening with LillyAnna lately?  It is hard to know. Should I start with how she was so miserabl...

Does the title of this post seem like too much?  Well, it is exactly how I feel.  I feel like a force too big to be crushed is constantly,...

Dear Miss LillyAnna,              Happy Fifth Birthday!  How do I begin to describe this year for you?  It has been phenomenal.  You contin...